QUANTITATIVE RESEARCHLuminas paints a picture of the journey patients with a rare disease travel…in different global markets
We are so excited and impressed that Luminas was able to reach this many of this patient type… to be able to give us this in-depth understanding of their experience.”
– Research Manager
SITUATION
A large pharmaceutical company is pursuing a global indication in a rare disease therapeutic area. As part of defining the market environment, there is a need to to understand patients’ complicated and varied journeys through different global healthcare systems.
APPROACH
A multi-modal qualitative approach in the US and several global markets that included In-depth interviews and focus groups
Augmented by online patient journals and unique projective techniques
Conducted among a hard-to-reach patient population, globally!
RESULTS
We brought to life patients’ intimate experiences, perspectives, emotions surrounding living with this rare disease including a deep understanding of:
Various points in their journey from origination to presentation, referral, diagnosis, brand choice, etc.
Pinpointed patient unmet needs and other leverage points
Created a brief video illustrating patients’ life with the disease using candid patient verbatim
IMPACT
Uncovered an unrecognized need for HCP-focused resources to support faster diagnosis, earlier treatment and peer collaboration
Provided clear direction for communications that would speak to patients' isolation, frustration and offer hope in potential treatment